This is my outlet for rambling. A space on the interweb where I will attempt to explain what life is like as a full-time pancreas. I'm a librarian (on hold) and a lover of coffee and cardigans. I'm a Mom to a dino obsessed T-1, 3 year old, and a tutu-wearing, bug wrangling, Montessori 5 year old. Sebulsky & I constantly debate the creation of our own sit-com... this website could serve as the pre-pilot rough draft.
Monday, August 27, 2012
This is what happened.
I heard the screams first... the gut-wrenching, blood-curdling sound of
thrashing and terror. I came running down the hall. I had just put dinner in
the fridge - "Firecracker Chicken" and "Collard Greens." I
knew it was you. Trip stayed sound asleep. I saw the fear in your eyes and I
froze. I saw you contorted, spasing and desperately trying to gain control of
your body and mind. I wanted to run away because I was scared too but instead I
immediately grabbed you. Your distorted fingers clamped onto me as I felt you
thrust uncontrollably against me. I cried out your name. You couldn't respond.
I ran through the house with you clinging onto me and grabbed your juice from
the back room. I poured it all over your face. You choked and spit it up. I
wept as I held you in my arms. You half cried-half vomited up the words
"Uh-Oh" as your body jerked and twisted violently. You didn't know
what was happening to you. I should have told you. I should have explained. You
were scared. I was scared... all I could do was hold you and cry out.
"It's okay Saul. It's okay Saul. It's okay Saul." I held you and with
one hand dialed Daddy's number.... I think I yelled "emergency come
home" but I'm not quite sure. I had to set you down on the couch to call
911... which frightened you even more. I promise I won't ever set you down
again. You kept saying "uh-oh" each time you felt your body
abnormally twinge and shudder. They asked me how long it lasted. I wanted to tell
them a lifetime. I think it was a matter of minutes. Daddy witnessed the end of
it. When we were able to check you... you were 105. I was confused. The EMT's
were so nice. One told me his wife was Type 1. He let you look at all the cool
knobs and gadgets on the equipment. You really liked the "glowing finger
pulse reader thingy." They asked you what you liked and you smiled through
your bop bop and replied "dump cars." When you felt better you played
cars with them on the living room floor. One of the EMT's used your foot as a
car ramp and jumped your favorite monster truck off your leg. You laughed out
loud. I felt the same way I did the first time I ever heard you laugh. Then we
talked about seizures. We went to the Emergency Room. The check-in lady laughed
because you had a cell phone in your pocket... then apologized and said she was
really sorry when I told her it was your insulin pump. She said she felt really
sorry for you. I wanted to tell her not too- but at the time I felt sorry for
you too and that made me sorry as well. Two different nurses asked if I was
Type 1. I told them no. They said, well who in the family? I said you. They
said how? I said "just lucky I guess." I wish you hadn't been so lucky. I wish I had better luck. I wish I had it. I wish I
could take it away from you. I wish I had it with you so I would know what it's
like- so I could better understand- take better care of you. Everyone at the hosptial of course
loved you. You "marched" with the nurse around the Nurses’ Station.
You blew kisses to the Dr's. I saw them crack smiles. Even the most serious of
people sometime need a release. Your nurse went and found you a "present."
She brought you a Cars puzzle. You said "McQueen" I always correct
you and say "NO... RED NOT GREEN." All this time you've been saying
McQueen and I thought you were saying green. It felt like a breakthrough. We
tried watching TV. There were no kids shows. We looked at lots of buttons,
do-dads, gizmos and thingy's on the bed. We destroyed the sheet. The Dr. said
you would be okay. We didn't do CT Scans. He said you were way to low. I called
UK immediately. I wanted to rip the pump off. I knew if I did we'd be back in
the hospital with DKA. You kept saying "go go go go go" while the Dr.
was talking to me. We left soon after. I asked if you remembered what happened
when we were walking in the parking lot. You just smiled. I said do you
remember the ambulance and you went "Nee-haw Nee-haw Nee-haw." I got
in the car and felt a gush of tears flooding my facial cavity. I was afraid if
I didn't close my eyes tight I might wash us away. I opened my eyes and the
urge to cry was there but nothing came out. I drove home. You watched Bubble
Guppies while I drove and I thought to myself... I have failed you.
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So, my eyes are swollen shut from crying at 5am...I love you Courtney:) Saying a special prayer for a sweet boy and his sweet Mama as we speak:)
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